Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Page 8 Page 9 Page 10 Page 11 Page 12 Page 13 Page 14 Page 15 Page 16 Page 17 Page 18 Page 19 Page 20 Page 21 Page 22 Page 23 Page 24 Page 25 Page 26 Page 27 Page 28 Page 29 Page 30 Page 31 Page 32 Page 33 Page 34 Page 35 Page 36 Page 37 Page 38 Page 39 Page 40 Page 41 Page 42 Page 43 Page 44 Page 45 Page 46 Page 47 Page 48 Page 49 Page 50 Page 51 Page 52 Page 53 Page 54 Page 55 Page 56 Page 57 Page 58body to absorb vitamins and healthy fats. But despite everything she did to stay healthy, she sometimes wound up in the hospital. Ms. Kramer-Golinkoff, who is 31, still devotes three to four hours a day to her treatment. She wears a special inflatable vest that shakes her to loosen the mucus. She uses a nebulizer to inhale aerosolized medications deep into her lungs to open the airways, break down the mucus, and fight infections. And every day she swallows 30 pills— 15 at a time, she says proudly. Otherwise it would take her “forever.” Ms. Kramer-Golinkoff also has developed diabetes, a common problem for people with cystic fibrosis. She gives herself multiple insulin shots each day. “Cystic fibrosis is the disease that keeps on giving,” she says lightheartedly about the many medical problems she faces. The disease is taking a toll on her body. Breathing is getting harder for her. It’s like having a cold all the time, she says. Yet she has what she describes as a “hunger to keep living.” A few years ago, she made an important decision, along with her parents, siblings, and friends. They would raise money to find new treatments and a cure for cystic fibrosis. Emily Kramer-Golinkoff Believing in the power to make a difference Emily Kramer- Golinkoff had an ordinary childhood in most ways. She grew up with two sisters and a brother in a house full of life and love. She played soc- cer, basketball, soft- ball, and the flute. She was a good student. But every day she had to do something not so ordinary: She spent hours taking care of her lungs. Ms. Kramer-Golinkoff was born with cystic fibro- sis. This is a genetic disease, meaning that it is inherited from one’s parents. Cystic fibrosis causes mucus to be sticky and thick. The mucus builds up in the lungs, hindering breathing and causing infections. As part of her daily treatments, Ms. Kramer- Golinkoff had to be thumped on her back to loosen the mucus. “It became as normal as brushing my teeth,” she says. To keep the disease under control, she visited doctors often and learned to pay careful attention to her diet. Cystic fibrosis makes it hard for the 22